Your browser doesn't support javascript.
Show: 20 | 50 | 100
Results 1 - 1 de 1
Filter
Add filters

Database
Language
Document Type
Year range
1.
Journal of Allergy and Clinical Immunology ; 151(2):AB230, 2023.
Article in English | EMBASE | ID: covidwho-2240139

ABSTRACT

Rationale: Historically, Hispanics are underrepresented in research which reduces the generalizability of research findings. Patient engagement in research can support more relevant research through better alignment with patients' and clinicians' real-world needs and concerns. A virtual conference series for the Hispanic community was held to gain insights to better engage Hispanic patients in research. Methods: A Patient Advisory Group (PAG) comprised of Hispanic patients diagnosed with COVID-19 and/or asthma and a Faith-based leader developed a six-month virtual series (objectives, platform, theme, agendas, and identification of presenters), pre-and-post knowledge surveys, polling questions, and session evaluations. Based on the PAG feedback, messaging, promotion and handouts were offered in English and Spanish. Results: Between October 2021- March 2022, 2200 people attended over the 6 virtual sessions. Attendees identifying as Hispanic patients or caregivers increased by 6.7%, and 19% requested content in Spanish. Overall knowledge was gained for sessions 2-6. 66.4% of attendees agreed they would be willing to be a research subject in an asthma study, while 15.6% did not agree and 18% would if their doctor thought it was a good idea. When asked about willingness to be a patient partner/advisor for an asthma study, 77.6% agreed, while only 3.2% did not agree and the remaining 20% were either unsure or participation would depend on whether their doctor thought it was a good idea. Conclusions: This bilingual virtual series engaged patients/caregivers to learn about COVID-19 and asthma, and tools used to participate in research with the goal to increase representation of Hispanics in research.

SELECTION OF CITATIONS
SEARCH DETAIL